Covid-19 Evaluation

Irish Deaf Society

Introduction
This document is a response to the invitation for submissions to the COVID-19 Evaluation and is submitted by
the Irish Deaf Society (IDS).

The IDS is the only national Deaf-led representative organisation of the Deaf, and it serves the interests and
welfare of the Deaf community. It provides educational and advocacy services, and advice delivered through
ISL to Deaf children, adults, and their families. ISL is the language of the Deaf community and was recognised as
such via the ISL Act 2017. The Deaf community sees itself as a linguistic and cultural minority group.
The IDS is recognised as a Disabled Persons’ Organisation (DPO) under the UN Convention on the Rights of
Persons with Disabilities (CRPD). IDS are members of the World Federation of the Deaf (WFD) and the
European Union of the Deaf (EUD) and have consulted with international Deaf representative bodies in relation
to a number of societal issues that impact on Deaf people.

The IDS leads the ISL Act Cross Community Group, which is a group of National organisations and service
providers working in the Deaf community. We consult with this group in relation to topics of interest to Deaf
people including the ISL Act and the topics discussed in this submission. This group includes the following
members: Bridge Interpreting, Centre for Deaf Studies (CDS) TCD, Chime, Council of ISL Interpreters of Ireland
(CISLI), Council of ISL Teachers (CISLT), Greenbow LGBTQ+, Irish Deaf Research Network (IDRN), Irish Deaf
Youth Association (IDYA), National Deaf Women of Ireland (NDWI), Sign Language Interpreting Service (SLIS),
Deaf Reach Services and Deaf Sports Ireland (DSI).

There are no accurate statistics on the size of the Deaf community in Ireland, but it is estimated that 5,000
people communicate in ISL as their primary language together with a community of an estimated 40,000
including family, friends and those working in the Deaf community. The most recent data from the central
statistics office show there are over 233,000 people who are deaf and hard of hearing in Ireland. However, not
all communicate in ISL as their primary language, or many may not consider themselves to be part of the Deaf
community. The IDS use the term Deaf to cover all Deaf people, regardless of the degree of hearing they have.

Below, we will highlight some points to be considered with respect to the COVID-19 pandemic and the Deaf
community.

Points to be considered

  1. Access to Public Health Information

    At the onset of the pandemic, Deaf ISL users were frequently excluded from essential public health
    updates. Government briefings were either not provided in ISL or interpreters were displayed in small
    windows at the bottom of a screen. This conflicts with Article 9 and Article 21 of the UNCRPD, which
    obliges states to ensure access to public information in accessible formats, including sign languages.
    Further, Article 11 explicitly requires States to take all necessary measures to ensure the protection and
    safety of persons with disabilities in situations of risk, including public health emergencies. The failure to
    provide timely and accessible health information in ISL during COVID-19 placed Deaf individuals at
    disproportionate risk by excluding them from life-saving guidance. Additionally, Section 5 of the ISL Act
    2017 requires public bodies to provide their services and information through ISL. States also have
    obligations under the Public Sector Duty to eliminate discrimination and promote of equality.
    Although the government eventually introduced ISL interpreters in some broadcasts, the absence of
    early and effective communication in ISL put Deaf people at greater risk and prevented full participation
    in public health measures.
  2. Access to Healthcare
    Deaf ISL users encountered multiple barriers to healthcare during the pandemic. Many healthcare
    services including GP consultations, consultant consultations and outpatient appoints were being
    conducted via telephone. This excluded Deaf people and added barriers to access in a time of crisis.
    Also, mask-wearing eliminated the possibility of reading facial expressions and lip patterns, critical
    aspects of language and communication. These experiences violate Article 25 of the UNCRPD, requiring
    that persons with disabilities receive health care on an equal basis with others. Access to State
    healthcare via ISL interpretation is also covered under the ISL Act 2017 and the Public Sector Duty,
    however the State failed to uphold these completely. Such failures not only jeopardised Deaf people’s
    access to care but also risked misdiagnosis, mistreatment and delays in urgent situations.
  3. Social Isolation and Mental Health
    The social distancing measures and lockdowns, while necessary for public health, disproportionately
    impacted Deaf individuals. Many relied on face-to-face communication, which was disrupted by mask-
    wearing and physical distancing. Elderly Deaf people in particular were isolated from both Deaf and
    hearing communities due to limited access to technology. Mental health supports, including helplines,
    were generally not accessible to Deaf people. This conflicts with Article 25 of the UNCRPD, which
    guarantees equal access to health care. Very few mental health professionals are fluent in ISL, and the
    absence of culturally and linguistically appropriate services left many without support during a time of
    crisis.
    Research conducted in 2022(1) on mental health service provision during the COVID-19 pandemic and
    Deaf ISL users revealed that while participants generally rated their mental health as good or very good
    prior to the pandemic, this changed significantly during the COVID-19 crisis. Many described their
    mental health at that time as fair or poor, indicating a clear decline in wellbeing. Mandatory mask wearing and lack of information in ISL were major negative influences on mental health along with
    lockdown restrictions and social isolation. Just 21% accessed formal mental health services during the
    pandemic, and of those, over half reported that the services were not useful for reasons including lack
    of ISL interpreters, inaccessible or culturally inappropriate services and reliance on text communication,
    which can be difficult as English is not the first language of the Irish Deaf community.
  4. Evaluation of the Government Response
    There were some positive developments in terms of government response to the needs of Deaf people
    in the COVID-19 pandemic such as the introduction of ISL interpreters at some government press
    briefings, however it was far from sufficient. Also, ISL interpreters were rightfully designated as essential
    workers. However, these came after significant advocacy and pressure from the Deaf community. The
    initial lack of ISL provision suggests that the State did not adequately anticipate or plan for the needs of
    linguistic minorities despite their obligations under the UNCRPD, the ISL Act, and the Public Sector Duty.
    There was also little evidence of structured consultation with Deaf organisations in the planning and
    implementation of emergency communication strategies, which breaches Article 4.3 of the UNCRPD,
    requiring involvement of persons with disabilities in decisions affecting them.
  5. Recommendations
    IDS make the following recommendations for any future public health emergencies based on the
    experiences of our members during the COVID-19 pandemic:
  1. Guaranteed and highly-visible ISL interpreting: All government communications should feature
    clearly visible ISL interpreters on all platforms (TV, online and social media), in full compliance
    with the ISL Act 2017, UNCRPD and Public Sector Duty.
  2. Accessible health services: Healthcare, including mental health and social services must provide
    access to ISL interpretation in both virtual and physical settings.
  3. Inclusive emergency planning: Establish formal mechanisms to include Deaf organisations in
    national emergency and crisis planning, fulfilling Article 11 and 4.3 of the UNCRPD.
  4. Awareness and training: Ensure all public bodies understand their duties under the ISL Act 2017
    and Public Sector Duty and that they receive Deaf Awareness Training, provided by IDS.

    Conclusion
    The COVID-19 pandemic exposed and deepened already existing inequalities experienced by Deaf ISL
    users. While some progress was made during the crisis, the Irish Government’s response often fell far
    short of its national and international obligations. Going forward, a rights-based and inclusive approach
    must be embedded in all public policy, crisis communication, and service delivery, not only to comply
    with legal duties, but to uphold the dignity, safety, and full participation of the Deaf community.

    Supporting Documents
    IDS Strategic Plan 2023-2026: https://irishdeafsoc.wpenginepowered.com/wp-content/uploads/2023/06/IDSStrategy-2023-2026-Web-Download-1.pdf (1)McAra, R. (2022) An Unheard Voice; Mental Health Service Provision and Irish Sign Language Users During the Covid-19 Crisis. Masters thesis (unpublished).  

    For more information on any of the above, please contact ceo@irishdeafsociety.ie.